Saturday, January 24, 2009

But I'm his Mom...and I'm supposed to fix this stuff

I had a long conversation with the Little Man's teacher yesterday. It all started with just wanting a progress report on his day - he had a rough couple days but not in his typical fashion. He was crying a lot and having accidents at school and at home. Turns out my worry was for nothing, he was doing great and earned 1 1/2 out of 2 stickers for the day!

We began talking a lot about his progress through the year and where he is struggling. She broached the subject of his current placement (integrated classroom with 6 special needs students and 15 mainstream) and stressed how this placement is with the intent of having the students working primarily in a large group setting - one that he is just not ready for. ALL of the class instruction is having to be retaught to him in a small group setting or one on one. His teacher, as I've said before, is amazing though and I think she actually enjoys the one on one time she has with him. While I appreciate all the work she's putting in for him, I know that it takes away from the other students in class. I believe she is trying to prep me for Contained Learning Classroom for him next year - a classroom comprised completely of special needs students.

I have been growing increasingly concerned with his social skills lately. He has always been delayed in this area - and when he had his initial screening for services 3 years ago that was the area with the greatest deficit. He seemingly has made NO progress in his social abilities since that time and in some areas has even regressed. When the Little Man was in the hospital last May, they questioned whether or not he was Asperger's (high functioning Autism). With a heavy heart and a deep breath - I came out and asked his teacher yesterday what her opionion was. If anyone would have in inclination one way or another it would be her.

Her words hit hard, though they weren't entirely unexpected. Hearing someone else echo your deepest fears is not something you ever want to hear. She told me that she was not in a position at the moment to suggest Asperger's - because then the district would have to pay for testing and she can't say that without discussing with them first. She said I NEEDED to follow up on that with his doctor. She also said that if she were to do an assessment on him right now - that he'd be at a 2 1/2 to 3 year old level in social development.

Asperger's has loomed in the back of my mind for over a year. I couldn't pinpoint why it bothered me so bad to hear the words from her. And then it hit me. Bipolar, I can all but cure that. As controversial as it sounds (and if you're in my shoes, you'll get it) I can give him the support and the medications that he needs to get beyond many of the issues that accompany his bipolar. That skinned knee can have a band-aid, I can patch it, it will leave a scar that may loom around, but it's livable. Asperger's? I can't fix it. There is no band-aid big enough to cover that wound. Yes, I can support him and help give him tools to work through the challenges that Asperger's brings, but I can't, no matter how hard I try, make it go away. This wound will never heal.

5 comments:

Laura K. said...

Can I ask why you say Aspergers isn't liveable? I'm just curious. I've known numerous adults who have an Aspergers diagnosis, and - while maybe a bit quirky - they are happy, successful, fulfilled adults, with jobs and families and friends. I'm not trying to be insensitive or anything - I know that hearing that news was like a gut-punch, even if you were expecting it somewhere in the recesses of your mind. I really am sorry, and I know it's another piece of normalcy stolen from his life, but he will still become The Little Man he is destined to become. He will continue to amaze us, as he has since Day One.

Six Green Zebras said...

I know he'll still grow up to do great things - he's still the same kid he was 2 days ago. Bipolar - with the right combination of whatever - the 'symptoms' can all but cease. I always have held in the back of my mind that when he's an adult the bipolar will be controlled and the hard parts will be a distant memory. Asperger's will be something that he will always have to work on and struggle with. I'm just done with adding quirks to him. I just want to scream "ENOUGH ALREADY", cut the kid a break.

Blog Antagonist said...

I get it. I really do. I try to tell myself that many adults with Asperger's lead successful and rewarding lives. Also, there is a strong link between these kinds of disorders and giftedness, so it's kind of like they get a little bonus to make up for some of the heartache they go through as they struggle through childhood.

He'll be okay. Especially with a Mom like you to help him through.

Anonymous said...

No words that I can say to make it better and I don't have experience to give advice. Just wanted to let you know I am here.

Anonymous said...

I'm sorry. I kind of know how you're feeling. It's hard to hear those words and not to be able to "fix" everything and know they'll never be "typical". But they have their own gifts that the typical kids don't have.

Regarding the Contained Learning Classroom, how do you think he would do in it? If you don't think it's best for him, you can refuse it. My middle son really needs something like that, but our district is so small they don't have one.

My oldest son is very asperger-ish. My middle son has the autism diagnosis, but I often see the sypmtoms more in the oldest son than in the middle one! What helped him a lot was being involved in a lot of activities, which forced him to "get out there" and socialize. I also kind of force him to get together with other kids one-on-one by inviting a friend over now and then. He's be happy to sit alone in his room reading a book all the time, but I know he would regress socially. He's in 6th grade and has come a long way socially over the years, but the social skills are still behind and awkward. It's one of the reasons he quit basketball this season, and now I really need to get him involved in something else. The more practice he has with others, the better.

You know my email. Vent away whenever you have to! I'm here for you!